Meet Molly and Robbie: 3-year-olds share rare diagnosis | Boston Children's Hospital

20 Dec 2016 02:24 35
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Learn more: https://thriving.childrenshospital.org/families-of-girls-with-spg47-find-support-in-each-other/

Robbie Edwards and Molly Duffy are among only 11 children in the world to be diagnosed with an extremely rare genetic disorder, called spastic parapalegia-47 (SPG47), and the only ones who live in the United States. On a recent fall afternoon, these two adorable girls and their parents met in person for the first time at Boston Children’s Hospital, where they both receive care.

Learn more about SPG47: http://www.childrenshospital.org/conditions-and-treatments/conditions/spastic-paraplegia-47

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